November 29, 2010

William has been admitted to hospital, following some nasty seizures today. The doctors are working to get his seizures back under control; they have said it could take several days. Please keep William in your thoughts - thankyou.

Update (30th November):
William has been transferred to a hospital with a specialist children's epilepsy centre, for further tests. libby and Finn are staying overnight with him. Thank-you for all the supportive messages.

Update (1st December):
William is now off the feeding tube and has resumed breastfeeding. He is also a lot more alert, now that the effects of the diazepam have worn off. He had several tests today, including 2 different MRI scans and a MEG scan. He is now undergoing a video EEG overnight and tomorrow morning, then myself and libby have a meeting with the consultant tomorrow afternoon to discuss the results of all these tests. libby and Finn continue to stay with William at the hospital, with myself and Poppy visiting every day. With some luck William will be back home soon.

Update (2nd December):
We had a long chat with the consultant today, and are now better informed about the types and severity of seizures William is currently experiencing, and likely to experience in the future. We have made some joint decisions with the consultant on the best ways to treat these seizures and will be adding a new medication (Keppra) to the anticonvulsant that William currently takes daily (Phenobarbitol), as well as starting him on a short course of ACTH injections and taking supplies of diazepam home, which we can use to try to bring him out of a seizure in future if it becomes necessary. We are hoping to bring William home tomorrow, providing he seems stable overnight tonight. Thank-you all for your continued support during this difficult time.

Peter


Update for 3rd December:
William is home!! He hated being in the hospital, so i was eager to get him back home and the doctors were happy that his seizures have settled down again so they let us all come home today - it's sooooo good to be back, and in time for the weekend too! (And it snowed lots while William was in hospital so we can enjoy playing out in it this weekend) :) Thanks everyone for all the lovely comments, they helped keep me going whilst staying with William at the hospital (Sir printed them off for me every day when He came to visit us).

libby
xxxxx